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SOME TESTS IN AT LAST
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Simone



Quit Date:
April 28, 2005

Posts: 953
Location: Australia

PostPosted: January 23, 2007 1:59 AM    Post subject: SOME TESTS IN AT LAST Reply with quote

After nearly 2 years of agony with my hands & Dr's dismissing me I had many blood tests by a GP & nothing showed so I whined a bit more & CT Scans reveal I have chronic Rheumatoid Arthritis & bony erosions in my hands Crying or Very sad Crying or Very sad the right hand being the worst cannot take anti-inflammatory meds as my Gut is still a mess -also on meds for , so I am on Norwegian Fish Oil you buy at the Rheumatology dept at the hospital only started yesterday -not bad at all I'm praying it will help has rave reviews from rheumotologists .

Darn the MS has progressed as well but I will not let all this get me down I WILL play my Piano/Guitar again so please accept my apologies or not tying many posts ..atm it's pure agony. LOL a few more tests to go phewwwww I'm almost glowing in the dark & I could pass for a pin cushion !!!!!!!!!!

Simone Very Happy Laughing
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Mary Dude



Quit Date:
June 15, 2004

Posts: 4803
Location: Pittsburgh, PA

PostPosted: January 23, 2007 8:00 AM    Post subject: Reply with quote

Hi Simone! I'm glad to hear you are getting somewhere with your diagnosis and treatment! RA is a tough one - and combined with MS...wow - that's a challenge - but at least they aren't telling you its all in your head! I know you'll find some relief and find a way to make your dreams come true - believing that they are possible is the first step. Keeping you in my prayers!! Hang in there!
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Mary D.
Smoke-free one day at a time!
Worry doesn't help tomorrow's troubles, but it does ruin today's happiness!
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swaneem



Quit Date:
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Posts: 1298
Location: Arizona

PostPosted: January 23, 2007 8:42 AM    Post subject: Reply with quote

My thoughts are with you Simone.

Donna
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Just when the caterpillar thought his world was
coming to an end..........God made him a
BUTTERFLY.
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Simone



Quit Date:
April 28, 2005

Posts: 953
Location: Australia

PostPosted: January 23, 2007 8:51 AM    Post subject: Reply with quote

Thanks so much Mary & Donna in all honestly even though I am in agony I feel much better knowing I am not going insane!, as my last Dr made me feel shocking saying it was all 'Stress' & I was was carrying on over nothing.....gee funny how the Endocrine specialist found my hormones are low & stomach tests proved in a gastric emptying test I had to eat a vile burger with radioactive dye so they could see how long my stomach took to digest instead of 30 minutes mine took up to 2 hours the test was 2hrs sitting with back up against some weird x-ray machine I could see my own stomach LOL.. so that was where the weight was coming from.....yes siree that was all in head as well pfttttttttt a lot to cope with but I am postive things will get better from here on...they have too!!!! Rant over a I can't type anymore



Simone xx
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kevin
Site Admin


Quit Date:
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Posts: 9538
Location: cincinnati, oh

PostPosted: January 23, 2007 9:05 AM    Post subject: Reply with quote

i'm glad you're getting somewhere with this, simone - doctors can be incredibly thick-headed when it comes to their diagnoses; of course, they can't be wrong, can they? - keep pushing them to get the care you need.
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keep choosing life!

kevin

the zen of the quit
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Rusty



Quit Date:
December 13, 2004

Posts: 497
Location: North Florida

PostPosted: January 23, 2007 9:13 AM    Post subject: Reply with quote

Simone, getting a diagnosis can be so trying, but I'm glad someone is finally paying attention to you. My sister has gone through nearly a year of being very ill and trying to find out what is wrong. After being blown off over and over, they have finally diagnosed her with Scleroderma and Reynaud's Disease and are sending her to a university teaching hospital about three hours away. It's an autoimmune disease...these seem to run in our family.

Are you seeing a rheumatologist, Simone? There are all kinds of wonderful new medications that don't mess with your gut. Be sure to go to the Arthritis Foundation website. They have lots of great information and a wonderful forum.

Good luck!

Rusty
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The Buddha says: Let us rise up and be thankful, for if we didn't learn a lot today, at least we learned a little, and if we didn't learn a little, at least we didn't get sick, and if we got sick, at least we didn't die; so, let us all be thankful.
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Simone



Quit Date:
April 28, 2005

Posts: 953
Location: Australia

PostPosted: January 23, 2007 9:16 AM    Post subject: Reply with quote

Thanks Kevin Smile I really pushed this time as I am pretty sure when somethings out of whack with your body that crazy you know it.How right you are Kevin & I will push now enough of Miss sit back & take it!


Rusty Hi!! I am awaiting my Rheumatologist's appointment in the Hospital as I have no private health cover Sad (((HUGS))) to your Sister.....darn autoimmune are sending me nutty MS/RA/CFS/IBS grrrrrrrrr.
I will most certainly be checking Arthritis sites here in Australia as well as the USA .I am on this atm http://www.melrosehealth.com.au/products/index.php?main_page=product_info&products_id=24
I got it from the rheumatology dept at the hospital

Take Care All.

Simone
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alleghany



Quit Date:
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Posts: 2049

PostPosted: January 23, 2007 11:26 AM    Post subject: Reply with quote

Hope you continue to make progress.

It is odd how arthritis seems to be so difficult to diagnose. Just had a family member get diagnosed after several years of complaining.

Sending you good thoughts!!! Cool
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Quit date: June 6, 2004
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essie662



Quit Date:
April 14, 2004

Posts: 3388
Location: MI

PostPosted: January 23, 2007 2:36 PM    Post subject: Reply with quote

Thinking of you, Simone Smile
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Essie
4/14/04
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Deb



Quit Date:
February 5, 2010

Posts: 967
Location: North Carolina (Originally New York)

PostPosted: January 24, 2007 12:52 PM    Post subject: Reply with quote

Simone,

Glad to hear that your getting somewhere. Some Drs make you feel like you imagine things that just annoys me.

You will play that guitar again because you are very determined.

Feel better. Very Happy

Deb

BTW, that burger sounded real nasty! Surprised
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mtwilsonranch



Quit Date:
January 20, 2006

Posts: 1863
Location: nevada

PostPosted: January 24, 2007 2:14 PM    Post subject: Reply with quote

Hi Simone,

I agree, when we are in tune with our bodies, we know that something is just not right......You keep on pushing, YOU are very special...

My thoughts are with you..

Hugs

Pam
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Right Now, this minute, this hour, this day, I choose not to feed my addiction....
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Idream



Quit Date:
October 9, 2006

Posts: 120
Location: Bethany, OK

PostPosted: January 24, 2007 5:25 PM    Post subject: Reply with quote

My prayers and thoughts are with you Simone - keep me posted on how the fish oil works. Mardi
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Simone



Quit Date:
April 28, 2005

Posts: 953
Location: Australia

PostPosted: January 25, 2007 12:21 AM    Post subject: Reply with quote

It is odd as I had a 'genetic marker' blood test that is supposed to pick up things like arthritis as well as plain film x-rays the x-rays showed something so that's why I had a CT Scan it was truly horrific ,I am in serious pain today worse than yesterday so I will quit typing for a while.

Mardi I will post up for sure if the Melrose Norwegian Fish Oil helps at all it usually kicks in after 4 to 12 months Sad
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Idream



Quit Date:
October 9, 2006

Posts: 120
Location: Bethany, OK

PostPosted: January 25, 2007 11:07 AM    Post subject: Simone - rest and feel better - post when you can! Reply with quote

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Cowgirl UP!



Quit Date:
July 26, 2004

Posts: 5029
Location: Ala

PostPosted: January 25, 2007 10:55 PM    Post subject: Reply with quote

sending hugs and strength your way...
Kay
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All with a little help from my friends, COWGIRL UP
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